With the radiation I'm on day 9 of 15 and it has been a challenging week. My legs were so weak from the steroids which prevent swelling of the nervous system, but make muscle coordination very difficult. I think my friends and family were a bit taken back to see me this way...needing round the clock care just to get up and down...it was a bit upsetting to me as well realizing I was just in the gym at a spinning class 4 weeks ago!
I have to remind myself this too shall pass. Last couple days I've gotten much stronger. Here's a selfie I took today. Off to radiation treatment now and getting my passport photo taken:) Last 2 years I have subjected myself to some conventional chemo that I truly regret because I always knew chemo is a treatment, not a cure. I'm now in a rebuilding place and will only choose effective curable treatments. I believe this with my whole heart and know the true cure comes from a healthy immune system. I'm gonna boost my stem cells and the treatments outside this country are amazing! I'm open to Immunotherapy trials but they are dangerous and have auto immune side effects that could be tough at this juncture. I am also sending my films to a couple of US places as well but they are limited to what they are allowed to offer. I'm at the hspital now...signing off:)